Genetic testing and/or screening for cystic fibrosis in Israel and Germany: The interplay of policies and socio-ethical considerations
Duration and funding
2024-2027.
The project is funded by the Deutsche Forschungsgemeinschaft (DFG).
Project number: 529272624.
Brief project description
This project proposes to explore the interplay of policies and socio-ethical considerations in the context of testing strategies for CF in Israel and Germany, two countries that are exemplary for adopting contrasting approaches to genetic testing. While CF screening and/or testing in Israel is offered pre-conceptionally and/or prenatally, in Germany it is part of newborn-screening (NBS). The decision when and how to test for CF provides a window into diverse and sometimes opposing normative considerations and policies.
Situated at the interface between sociology, bioethics and law/policies, the aim of this empirical bioethics project is to gain in-depth understanding of the contexts that shape national policies and public perspectives, and of the impact of such policies on key-stakeholders (professionals, parents and patients).