Non-Invasive Prenatal Testing: Implementation in England, France and Germany

26-27 October 2022, Big Data Institute Building, Oxford

Non-Invasive Prenatal Testing: Implementation in England, France and Germany

Organisers: Ruth Horn, Hilary Bowman-Smart and Adeline Perrot

Programme:

Wednesday 26th October 2022

14:00 – 14:40: Ruth Horn, Universities of Oxford and Augsburg, Introduction

SESSION 1: THE ENGLISH CASE

14:40 – 15:10: Felicity Boardman, University of Warwick

Attitudes to prenatal diagnosis amongst people living with genetic conditions

15:10 – 15:40: Heather Strange, Cardiff University

User experiences of NIPT: findings from qualitative research with private patients in the UK

15:40 – 15:50: Jane Fisher, Antenatal Results and Choices

Summary: The English Case

15:50 – 16:00: Break

SESSION 2: THE GERMAN CASE

16:00 – 16:30: Hilary Bowman-Smart, University of Oxford

Non-invasive prenatal testing in Germany: a unique ethical and policy landscape

16:30 – 17:00: Dagmar Schmitz, Aachen University (Online)

The aftermath of NIPT: changing clinical pathways and abortion practices

17:00 – 17:30: Tamar Nov Klaiman, Ben-Gurion University of the Negev

A Tale of Two Societies - Germany and Israel through the mirror of NIPT technology

17:30 – 18:00: Julia Perry, University Medical Center Göttingen

Anticipation and Decision-Making regarding NIPT in Germany

18:00 – 18:10: Christoph Rehmann-Sutter, University of Lübeck

Summary: The German Case

Thursday 27th October 2022

SESSION 3: THE FRENCH CASE

09:30 – 10:00: Caroline Lafarge, University of West London & Isabelle Ville, EHESS

The collective labouring of emotions in the context of pregnancy termination for fetal anomaly in France: a socio-political perspective

10:00 – 10:30: Laurence Lohmann, Laboratoire Cerba

Organization of NIPT in the prenatal course of pregnant women in France

10:30 – 11:00: Adeline Perrot, University of Oxford

Health professionals and scientists’ views on Genome-Wide NIPT in routine clinical care in France

11:00 – 11:10: Carine Vassy, University of Paris 13

Summary: The French Case

11:10 – 11:30 Coffee

CONCLUSION

11:30 – 11:40 Angus Clarke, Cardiff University

Commentary and key take-away messages

11:40 – 12:00 Ruth Horn

Final discussion and closure

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